• The Boston Hemophilia Center

    The Boston Hemophilia Center is the largest hemophilia
    treatment center in New England.
     

    Patients with hemophilia are treated through the Boston Hemophilia Center, the largest hemophilia treatment center in New England. This federally funded center provides comprehensive medical evaluation and treatment, ongoing medical management, counseling and support, and access to new treatment approaches through clinical research.

    Patients treated through a designated treatment center like ours have a significantly reduced risk of bleeding complications, better school attendance, and improved emotional health and well-being.

    We specialize in treating infants, children and young adults up to age 22 with hemophilia A (factor VIII deficiency), hemophilia B (factor IX deficiency), von Willebrand disease, rare bleeding disorders like factor VII, XI or XIII deficiency, and platelet function disorders. 

    Centerpoints is the Boston Hemophilia Center’s patient and family newsletter. Learn about current events, meet our patients and get the latest news and announcements.

     

    How We Diagnose & Treat Hemophilia

    The first step in treating a child with hemophilia is an accurate and complete diagnosis. Our pediatric hematologist may perform blood tests to confirm the diagnosis, including a complete blood count, a clotting factor test to check levels of “clotting factors” in the blood, and if indicated, DNA testing to test for a specific mutation and identify carriers. A review of the child’s family medical history may also aid in diagnosing the disease.

    Hemophilia treatment depends on the type and severity of disease, with the goal of preventing complications associated with bleeding (primarily head and joint bleeding). Factor replacement therapy is the basic treatment for people with bleeding and clotting disorders. This is the infusion (injection into the bloodstream) of factor concentrates given to prevent and control bleeding.

    Mild hemophilia can be treated with injections of a synthetic hormone called DDAVP or nasal spray that may increase the level of Factor VIII in the blood. In addition, our pediatric hematologist will recommend giving a child with hemophilia immunizations under the skin instead of in muscle to prevent deep muscle bleeds; avoid prescribing aspirin or ibuprofen, as well as products containing them; and provide frequent, follow-up care, including regular assessment of joints.

    Factor Program

    Factor replacement therapy is the basic treatment for people with bleeding or clotting disorders. This is the infusion (injection into the bloodstream) of factor concentrates given to prevent or control bleeding or excess clotting.

    We know factor products and supplies are very costly. As a federally designated hemophilia treatment center, the Boston Hemophilia Center negotiates highly competitive rates with commercial insurers and provides discounts to MassHealth.
    Proceeds from the Factor Program support such important initiatives as:

    • Clinical services
    • Data collection to improve care 
    • Educational programs
    • Special projects like the oral history project "The Gift of Experience" and the book The Gift of Experience: Conversations about Hemophilia
    • Grants to non-profit organizations that support hemophilia patients and their families

    To enroll in the Factor Program or for other issues and questions, please contact:
    Clifford F. Haas, Factor Program Customer Service and Operations Manager
    Phone: 617-732-5409
    Fax: 617-732-5706
    Email: cfhaas@partners.org 

    To contact the Factor Program Pharmacy:
    Eaton Apothecary
    Phone: 617-265-3323

    Fax: 617-265-3326

    Our Treatment Teams

    Dana-Farber/Boston Children’s Cancer and Blood Disorders Center patients have access to the broadest set of pediatric expertise available. The breadth of our expertise allows us to assemble a team of specialists to meet the specific needs of each patient.

    At the core of the treatment team is both a hematologist and a geneticist to advise families on the genetic implications of hemophilia. Our hematologists, nurse practitioners and social workers educate patients and families about hemophilia and offer psychosocial support throughout the treatment process. When requested, we can do outreach at schools and work directly with teachers to integrate students with hemophilia into the classroom.

     

    Research & Clinical Trials

    Our investigators participate in large, multi-center research studies and lead smaller, independent initiatives to help improve hemophilia treatment. We are involved in several active clinical studies for hemophilia A and B, von Willebrand disease, and factor XIII deficiency. Our scientists are conducting research that will help to improve patients’ lifestyles, including trials of new, long-acting replacement factors aimed at decreasing the frequency of required treatments. We are also investigating the possible use of gene therapy to treat hemophilia and other bleeding disorders. In addition, The Boston Hemophilia Center is working with the Centers for Disease Control and Prevention to evaluate ways to decrease and prevent hemophilia complications, especially blood-borne infections, and to better plan for patients’ medical care. Search our current clinical trials.
  • Need Help? Speak with Us.

    Our specialized new patient coordinators can answer your questions about treatment options and becoming a patient. In urgent cases, we typically can see new patients within 24 hours.
  • Find Clinical Trials

    We sponsor and collaborate on clinical trials that break new ground in pediatric cancer and blood disorder treatment. callout bg
  • Treating Hemophilia in India

    India Partnership Callout 

    Dana-Farber/Boston Children's is partnering with the Hematology program at Sawai ManSingh (SMS) Medical College and Hospital located in Jaipur, India.

  • Treating Blood Disorders

    Dana-Farber/Boston Children's Ellis Neufeld, MD talks about giving children with serious blood disorders a chance for a normal life.