• Patient & Family Support Services

     

    When treatment requires in-patient stays or frequent outpatient visits, life can feel like it is on hold for everyone. We offer patients and families support services that limit the disruptions a cancer or blood disorder diagnosis can cause and ease the patient’s transition back to their lives once treatment is complete.

    We also offer staffed resource centers that provide learning materials about treatments and procedures. They also provide patients and siblings with much-needed diversions from illness through a variety of fun age-appropriate activities. 

    Clinical Support Services

    Serious illness can impact patients and families in a number of different ways, and the effects can be felt long after treatment ends. Our clinical support services for survivorship, fertility preservation, palliative care, cancer risk assessment and psychosocial care are led by trained professionals and doctors and tailored specifically to the needs of our patients.

    Pediatric Resource Program

    Our Pediatric Resource Program provides resource assistance for eligible families whose children are receiving treatment at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. The program helps families access concrete resources; identifies local, regional and federal assistance programs; and serves as a patient and family advocate between Dana-Farber/Boston Children’s and the resource community. You may contact us at 617-632-5796, 617-632-6842, or 617-632-3365.

    Just for Teens Program

    Just for Teens provides activities and events tailored to the specific developmental and psychosocial needs of teens and young adults with cancer. The program gives teen patients creative outlets for self-expression and helps them meet other teens going through similar experiences. Activities include:

    • Daily art activities, including jewelry-making, painting, mosaics and much more
    • An iTunes program that allows children to download songs for free
    • A documentary program that helps teen patients create a documentary about their journey through cancer treatment. In addition to sharing thoughts and feelings in a safe and supportive environment, teens learn the basics of creating a documentary with photography, music, and video. They leave with their own documentary to share with friends and family.
    • A pottery program that allows teens to decorate and glaze pieces of ceramic pottery while in the hospital or receiving treatment at the Jimmy Fund Clinic
    • Laptops and wireless internet access in the Jimmy Fund Clinic, to check email, chat with friends, play games, and watch movies
    • FACES (Feeling Accepted, Confident, Empowered and Strong), a social program for girls that shares beauty, skin care, and nutrition tips for during and after treatment
    • FLASHES (Filming Life and Sharing Hope, Encouragement and Strength), a social program for boys that involves film and photography projects
    • Outside events, including:
      • Red Sox trip to spring training in Ft. Myers, FL 
      • Red Sox game at Fenway Park 
      • Boys' Weekend 
      • Girls' Weekend 
       

    For more information, call the Jimmy Fund Clinic at 617-632-5708 or the patient and family educator at Boston Children’s Hospital at 617-355-5645. 

    Back-to-School Support

    Returning to school after a prolonged hospital stay can be an emotional experience. Our back-to-school support services are designed to ease children’s transition back to the classroom. Our Back-to-School Program and School Liaison Program help our patients transition back to school by educating classmates, teachers and school administration through in-person counseling and routine school visits. Learn more.

    Patient & Family Resource Centers

    Our resource centers, accessible from the treatment areas at Boston Children's Hospital and Dana-Farber Cancer Institute, offer educational materials and activities for patients and families. Each resource center provides access to reference materials and support programs that cover a wide array of educational topics. Some materials are more traditional, like books and pamphlets, while others are interactive, such as videos and computer games. Learn more.

    Home Visits

    One of the many challenges facing families after treatment is caring for a child with cancer or blood disorder at home. Our Hospital-to-Home program ensures a safe and seamless transition for children back into their home or community. Our Community Outreach nurse provides onsite visits for eligible patients to reinforce patient and family education, identify opportunities to improve care, and conduct a face-to-face handoff with a home-care agency nurse to provide for the specific needs related to the patient’s diagnosis, treatment, side effects, and other requirements. The program is available to all newly diagnosed pediatric oncology and post-transplant patients who live in Massachusetts within 90 miles of Boston.

    Call our Community Outreach nurse at 617-355-0472 for more information. 

    Disability Services and Access

    Dana-Farber/Boston Children’s is compliant with the Americans with Disabilities Act (ADA). All of our buildings are wheelchair accessible, and parking assistance is available. In addition, our cancer educational materials are available in large print and audiotape format.

    Many of our patients are eligible to use THE RIDE, which provides transportation, including lift-equipped vans, for people with physical and mental disabilities that prevent them from using public transportation.

    For more information, call the Dana-Farber ADA coordinator at 617-582-7100 or the Children’s Hospital ADA coordinator at 617-355-8917.

  • E-Bulletin Updates

    Our E-Bulletin provides updates on programs, workshops, events and other resources to help our patients and families.
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  • Spiritual Support

    We offer spiritual consultation from a variety of perspectives, including interfaith, Islamic, Jewish, Protestant and Roman Catholic faiths.
  • Participating in Clinical Trials

    Get answers to frequently asked questions about participating in clinical trials.callout bg