We offer two clinics to specifically help childhood-cancer survivors and pediatric brain-tumor survivors. The clinics offer tailored care and services to help survivors access clinical and educational support after treatment.
The Stop & Shop Family Pediatric Neuro-Oncology Outcomes Clinic addresses the long-term needs of survivors of pediatric brain tumors. It also conducts research and shares its expertise with other centers. Visit the survivor section of the Brain Tumor Center to learn more.
The David B. Perini, Jr. Quality of Life Clinic provides care and advocacy for survivors of childhood cancer, conducting research on the long-term effects of cancer treatments, and offering education and support for survivors of cancer.
If you were diagnosed with cancer at age 21 or younger and you have been off treatment for at least two years, you may benefit from the programs and services of the clinic.
The clinic gives survivors of childhood and adolescent cancers access to the expertise, education, and support needed to manage key issues related to survivorship, including the long-term effects of treatment, the risk of second cancers, and certain social and psychological concerns. Our physicians, nurses, researchers, and psychologists are experts in survivorship, and will work with you and your primary care physician to create a long-term care plan.
We welcome all pediatric cancer survivors; you do not need to have been treated at Dana-Farber/Boston Children's Cancer and Blood Disorders Center in order to be seen at the clinic.
When you visit the David B. Perini, Jr. Quality of Life Clinic, your health care team will compile a list of treatments you had as a cancer patient, and then work with you to review the possible long-term side effects of those treatments. Our experts will help you learn how to care for yourself to help minimize the risk of future complications.
After your clinic visit, you'll get a summary of recommendations that can serve as a useful guide to you and your primary care doctor. These may include tests and screenings that are recommended based on your particular cancer diagnosis and treatment regimen. This after-care summary will provide you with a guide for making healthy choices and improving your quality of life.
Depending on your cancer diagnosis and treatment, you may also benefit from our programs and expertise in:
The David B. Perini, Jr. Quality of Life Clinic offers a wide range of educational resources and support groups for survivors of childhood cancers. For a full listing, check our calendar of events and support groups.
The David B. Perini, Jr. Quality of Life Clinic is at the forefront of survivorship research, gathering important data on the long-term effects of childhood cancer treatment. We direct or participate in numerous local and national programs designed to improve care and knowledge for cancer survivors.
Our researchers are helping develop more effective treatments, while at the same time finding ways to combat the long-term side effects of cancer treatment. This is part of our overall effort to provide the best possible quality of life for all cancer patients - past, present and future.
When you visit our clinic, you may be eligible to participate in specific research studies, depending on your diagnosis and treatment. You can ask about such opportunities when you visit.
To make an appointment at the David B. Perini, Jr. Quality of Life Clinic, please call the clinic facilitator at 1-855-320-2095 or email Perini_Clinic@dfci.harvard.edu.
To inquire about conferences, educational programs, support groups, or other administrative matters, please call 1-800-883-6012.
To make an appointment in the pediatric survivorship clinic, you will need to have been off treatment for at least two years and been diagnosed with cancer at age 21 or younger.
If you were diagnosed at age 22 or older, it may be more appropriate for you to be seen in Dana-Farber's Adult Survivorship Program.
You do not need to have been treated at Dana-Farber/Boston Children's in order to be seen in either the adult or pediatric survivorship clinic.
Depending on your age, diagnosis, and treatment, it may be more appropriate for you to be seen in Dana-Farber's Adult Survivorship Program. To learn what might be best for you, call our clinic facilitator at 1-617-632-5124.
To make an appointment at the David B. Perini, Jr. Quality of Life Clinic, please contact the clinic facilitator at 1-617-632-5124 or email Perini_Clinic@dfci.harvard.edu.
The David B. Perini, Jr. Quality of Life Clinic gives you access to experts in the long-term care of cancer survivors. Through the clinic, you can see specialists in radiation oncology, gynecology, endocrinology, and more. After your appointment, we will give you a set of recommendations for your follow-up care, which we also send to your primary care physician.
You are welcome to visit the pediatric survivorship clinic at any time, as long as you've been off treatment for at least two years. People often come at times of transition in their lives, such as when they get married, start a family, or begin a new job.
Even if you already have a primary care physician, you can still benefit from the clinic's services. A visit to the clinic can help you find health care providers who can address your needs, as well as the needs of your family. We recommend that survivors of childhood cancer meet regularly with an oncologist or oncology nurse practitioner who understands their medical history and long-term needs. For some patients, we may recommend an annual visit. For others, we may recommend visiting less frequently.
David and Eileen Perini founded the clinic to honor the memory of their son and provide a resource for survivors of pediatric cancers. David B. Perini, Jr., was a young man who, despite his personal battle with cancer, lived a vibrant life devoted to improving the quality of life for others.
“Most women think that if they had cancer as a child, then they’ll never have children. It turns out that many of them can get pregnant. It just might be a little harder,” said Lisa Diller, MD, chief medical officer of Dana-Farber/Boston Children’s and senior author of the study.
It’s important to think about the end of cancer treatment before the day actually comes. Julia Pettengill, the mother of a leukemia cancer survivor, shares questions to ask your oncologist as your child nears the end of treatment.
A genetic test can explain why a child or young adult developed cancer and can help to predict whether he/she is at risk for other cancers