Pediatric palliative care is intended to optimize the quality of life, promote healing, and provide comfort for children with life-threatening illnesses.
The Pediatric Advanced Care Team (PACT) at Dana-Farber/Boston Children's Cancer and Blood Disorders Center consults with you, your family, and your primary care team to bring together information and guidance needed to make the best health care decisions for your child.
Our services include:
We bring together experts from a wide variety of disciplines to care for your child. Our care team includes:
We consider you and your child to be integral parts of the care team and not simply recipients of care. We work closely with you to customize a plan of care for your child.
The PACT has served as a model program for pediatric institutions around the United States. Joanne Wolfe, MD, MPH, our Division Chief and medical director, is nationally recognized for her pediatric palliative care expertise.
Wolfe and other members of the team participate in regional and national efforts to improve care for children with advanced illness.
The PACT's services include:
PACT members will work closely with your child, family, and primary care team to develop a comprehensive quality-of-life care plan. We do not replace your child's primary care team; rather, we support treatment of the illness and at the same time strive for optimal quality of life.
During your consultation, we will evaluate factors such as your child's feelings and health, your family's needs, and the care team's medical plan in order to make the best possible recommendations. Our clinicians can meet with your child and family at the hospital, at one of our outpatient facilities, or at your home.
Our team members want your child and family to make educated decisions. We are available to talk with you and provide educational resources on a variety of topics, including communication and decision-making, pain and symptom management, palliative care, hospice and home care, family dynamics, sibling issues, school interactions, and spiritual concerns.
It's important that your child and family have support both at the hospital and when you return home. We can help identify supportive agencies and community-based organizations. In addition, we can provide emotional and psychosocial support, and help arrange end-of-life care when necessary.
A consultation can be arranged at any time during your child's treatment. Our team is available to provide consultation 24 hours a day.
Our staff of compassionate and experienced pediatric specialists includes clinicians and other healthcare providers with expertise in palliative care, symptom management, complementary medicine, and speech-language pathology. Our team also includes an expert in interfaith spiritual care.
Our clinicians are focused on family-centered care. From your first visit, you'll work with a team of professionals who are committed to supporting your family's physical and emotional needs.
Wolfe is nationally recognized for her pediatric palliative care expertise. She and other members of Pediatric Advanced Care Team participate in regional and national efforts to improve care for children with advanced illness. She is board certified in Hospice and Palliative Medicine.
Ullrich is an attending physician with expertise in pediatric palliative care and symptom management. In addition, she is an instructor of pediatrics at Harvard Medical School. She completed her medical training at Boston Children's Hospital.
Goldstein is a general pediatrician with expertise in palliative care and community-based medicine. He is an instructor in pediatrics at Harvard Medical School.
Duncan is a hematology oncology nurse practitioner with expertise in pediatric palliative care.
Fountain is the Practice Coordinator for the PACT.
Our team is available by page 24 hours a day.
To call the Dana-Farber page operator, dial 1-617-632-3352 and ask for the clinician by name or the PACT clinician on call.
To call the Boston Children's Hospital page operator, dial 1- 617-355-6000 and ask for the clinician by name.
For non-urgent matters Monday-Friday, please call 1-617-632-5042 during regular business hours or email Rita Fountain at firstname.lastname@example.org. If you are unable to reach us at this number or through email, please use the paging instructions above.
Pediatric Advanced Care Team
Dana-Farber Cancer Institute
450 Brookline Avenue, SW 411
Boston, MA 02215
Patients have access to spiritual consultation from a variety of perspectives, including interfaith, Islamic, Jewish, Protestant and Roman Catholic faiths.