At Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, we are committed to providing exceptional care for children with rare cancerous conditions. Our program offers the latest therapies and clinical trials and provides access to pediatric experts with extensive experience treating children and young adults with rare solid tumors.
Located in Boston, MA, our Rare Tumors Program has the expertise to diagnose and treat a wide range of rare cancers, including:
Treatments for rare tumors are based on the type of tumor, the child’s age, overall health and medical history, location and size of the tumor, the extent of disease and the doctor’s expectations for how the tumor will behave.
Surgery is used to treat many rare forms of cancer. Following surgery, radiation therapy and/or chemotherapy may be used to kill off any remaining cancer cells. This may include the use of new biologic agents that target specific mutations in these tumors.
Depending on the type of cancer, other treatments may also be used, including high-dose chemotherapy with stem cell transplant, chemoembolization, cryotherapy thermotherapy, laser therapy, or shunts that drain fluid buildup from the brain.
Patients who come to us for treatment have access to the broadest set of pediatric and oncologic expertise available. The breadth of our expertise allows us to assemble a team of experts to meet the specific needs of our individual patients.
At the core of the treatment team are pediatric oncologists with expertise in treating many rare forms of cancer. Many of our specialists are also active researchers, so our patients have access to the most advanced treatments available.
From there, we build a team that is best suited to carry out the patient’s treatment plan, including radiation oncologists, surgeons, pathologists, radiologists and nurses, as well as specialists in neurology, endocrinology, dermatology, ophthalmology, and hepatology (liver specialists). We round out the team with experts who help the child prepare for life during and after treatment, including psychiatrists and psychologists, child life specialists, social workers, nutritionists, and school specialists.
Lindsay Frazier MD explains how a multidisciplinary team of specialists come together to deliver care for solid tumors.