Patient & Family Advisory Council
The Pediatric Patient and Family Advisory Council (PPFAC) is a group of pediatric patients and caregivers who partner with Dana-Farber/Boston Children’s staff,
providers, and leadership to help shape decisions that affect the patient experience.
What we do
- Advocate for expanded support services including our Transitioning Off Treatment program, which guides families with a child nearing
the end of his or her treatment.
- Partner with hospital administration for more flexibility including the Home Hydration Program, which allows patients to hydrate at home instead of overnight at the hospital.
- Improve infrastructure and physical spaces, including the renovations to the Jimmy Fund Clinic and Boston Children's Oncology Unit.
- Implement more family-friendly initiatives including the Weekend Initiative, a monthly coffee hour during which patients and families can drop in to share their thoughts and ask pediatric council members questions.
Looking to get
involved? Join us!
- Are you a current or former pediatric patient (18+) or a caregiver of a pediatric patient treated at Dana-Farber/Boston Children’s?
- Do you have an interest in improving the patient experience?
- Are you able to think outside of your own patient experience to provide feedback that benefits all pediatric patients and families?
- Can you attend a two-hour meeting in the evening on either the third or fourth Tuesday of each month?
- Are you able to volunteer 2-5 hours per month and commit to 1 year of service?
For more information about the PPFAC, contact Renee Siegel at 617-632-4527 or send an email to Renee_Siegel@dfci.harvard.edu.
Hear from some of our PPFAC members: