Discussing Child’s Cancer Prognosis More Likely to Produce Peace of Mind and Decrease Anxiety in Parents
May 14, 2015
(News Release)
New
findings led by researchers at Dana-Farber/Boston Children’s
Cancer and Blood Disorders Center show informing parents about their
child’s cancer prognosis – even when the prognosis is less than favorable – is
much more likely to give parents peace of mind and hope rather than increase their
anxiety or cause them to become depressed. The study was to be presented at the
American Society of Clinical Oncology (ASCO) annual meeting on Saturday, May
30, 2015.
The
research should ease physicians’ concerns that discussing an unfavorable
prognosis with young patients’ parents will cause the parents to become
despondent or emotionally distraught, the authors said.
“Most
agree that patients and families should know as much about their diagnosis,
treatment, and prognosis that physicians can give them,” said Jonathan Marron,
MD, of Dana-Farber/Boston Children’s, who led the study. “At the same time,
data have suggested that some oncologists are reluctant to discuss the details
of prognosis with patients and their families out of concern that it might cause
unnecessary anxiety and lead to depression. Our study suggests that such
concerns are largely unwarranted.”
In
the study, Marron and his colleagues surveyed 353 parents of children newly
diagnosed with cancer at Dana-Farber/Boston Children’s and Children’s Hospital
of Philadelphia, asking about their discussions of prognosis with the child’s
oncologist, and whether those conversations had a positive or negative effect.
The
investigators found that among parents whose children had less favorable prognoses,
those who reported receiving high-quality information from the medical team
gained peace of mind and had greater trust in the child’s oncologist. Parents
who received more prognostic information were not significantly more anxious,
depressed, or less hopeful than those who received less of such information.
“Providing
families with a full explanation of the likely course of a disease is critical
to helping them plan and have reasonable expectations about the outcome of
treatment,” Marron remarked. “More research is needed to determine if the
information being provided by oncologists is fully received and understood by
families.”
The
senior author of the paper is Jennifer
Mack, MD, MPH, of Dana-Farber/Boston Children’s. Co-authors are Tammy Kang, MD,
MSCE, of Children’s Hospital of Philadelphia, and Angel Cronin of Dana-Farber.