Sickle cell disease: An unpredictable adversary
November 19, 2016
One teenage girl describes the intense pain of a sickle cell disease crisis as the feeling that heavy books are piled on her. Her sister likens it to being stabbed by needles. They don’t know when a debilitating crisis will strike, only that it will and that the sudden bouts of pain can last days, The Boston Globe reports.
“The really cruel thing about this disease is that in between crises, you’re essentially 100 percent able. You have one of these crises, you’re 100 percent disabled,” Dr. Matthew Heeney, director of the sickle cell disease program at Dana-Farber/Boston Children’s, tells the newspaper.