Our Transition to
Survivorship program provides support and education to help families transition
from active treatment for childhood cancer to off-therapy care.
The last day of cancer
treatment is a time of strong emotions for patients and their families.
Families feel joyful, relieved, and grateful. But at the same time, many
families feel a loss of security that comes with finishing treatment and not
seeing their doctors and clinic staff so often. Families also can feel
overwhelmed as they try to get back to normal life. Transition to Survivorship helps
parents prepare follow-up care schedules, find resources, understand possible late
effects of treatment, and much more.
During the transition
period, we will continue to support your child as he or she returns to normal life and typical activities, such as
school. You also will start to reconnect with your pediatrician and to build
support and care outside of Dana-Farber/Boston Children’s.
After cancer treatment ends, your child’s primary oncologist and nurse practitioner will give you
a treatment summary and follow-up plan – your child’s personal “roadmap.” A
copy of the summary, along with a letter stating that your child has completed
therapy, will be sent to your child’s pediatrician or primary care provider.
This will open lines of communication between Dana-Farber/Boston Children’s and
your child’s regular doctor as the transfer of care begins.
After about two years off
treatment, your child will have the option to seek
long-term survivorship care and support through the David B.
Perini, Jr. Quality of Life Clinic or the Stop &
Shop Neuro-oncology outcomes clinic.
To learn more about transitioning off of childhood cancer treatment, watch the archived Google+ hangout below. Nina Muriel, MD, a psychiatrist and director of the Pediatric Psychosocial Program, was joined by a panel of clinical experts, family members and a patient who have experienced this transition. The group discusses the challenges faced when cancer treatment ends, and shares tips on how to make this time easier for others in similar circumstances.
Phone: 617-632-5124Email: Perini_Clinic@dfci.harvard.edu
Chronic fatigue is a common challenge people face after cancer treatment. Join our 4-session workshop to help improve your fatigue. This program is for adults who are at least three months off of active cancer treatment and who can walk a minimum of 10 minutes a day. Email to register or for more information.
January 29, February 5, 12, and March 5 (Mondays) 10:00-11:00 a.m.
It’s important to think about the end of cancer treatment before the day actually comes. Julia Pettengill, the mother of a leukemia cancer survivor, shares questions to ask as your child nears the end of treatment.
Relapse is a word any cancer patient dreads. But if your child does relapse, Deanna Abrams offers advice for parents.