About Sickle Cell Disease
Since 2014, we have been
working with Partners In Health at the Hôpital
Universitaire de Mirebalais in Mirebalais, Haiti on the development of a sickle
cell disease newborn screening program, the first screening program in the
country. Our screening program is now well established at the hospital.
Our team consists of a program coordinator, a
program nurse, and a laboratory technician that performs isoelectric focusing
(IEF) on each of our patient’s blood samples. As of August 2015, we had screened approximately 2,100
newborns for sickle cell disease. Each
week, greater than 90% of newborns born at the hospital are screened. We
plan to make screening a routine component of newborn care at the hospital this
year and attain our goal of 100% screening.
In addition, we have
developed a comprehensive sickle cell disease management program for our
already established sickle cell disease patients. At this clinic, we
provide anticipatory guidance, monthly medications including penicillin and
analgesics, as well as vaccines. As of August 2015, 15 children were
enrolled in this program.
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