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Researchers say Study Underscores Importance of Newborn Screening for “Bubble Boy” Disease

July 31, 2014
Findings from a new study argue for expanding newborn screening for “bubble boy” disease, which leaves affected infants so vulnerable to infection that most die before their first birthday if untreated. Covered by the Wall Street Journal, USA Today and other outlets.

Tips for Primary Care Physicians Treating Survivors of Childhood Cancer

July 20, 2014
With recent research finding that many internists do not feel comfortable or prepared to care for survivors of childhood cancer, Lisa Diller, MD, offers tips for primary care providers treating survivors of childhood cancer. MedPage Today and the blog KevinMD picked up the story.

Just 16, Karina Moreira Battles Cancer in her Own Style

July 19, 2014
Fashion blogger Karina Moreira, who is being treated for osteosarcoma, recently celebrated her 16th birthday in grand style with a limo and friends, The Boston Globe reports.

Exploring Scorpion Venom’s Potential to Treat Cancer

June 24, 2014
Building on research from Dana-Farber/Boston Children’s neuro-oncologist Nicole Ullrich, MD, PhD, a pediatric oncologist at Fred Hutchinson Cancer Research Center is investigating the potential of using chlorotoxin from scorpion venom to target tumor cells, Wired magazine reports.

A Young Cancer Patient’s Take on “The Fault in Our Stars”

June 21, 2014
Anya Harp, a 13-year-old leukemia patient, saw the hit movie “The Fault in Our Stars” and describes her reaction to it in The Boston Globe.

In Cancer’s Aftermath, Young Adults Find Support from Each Other

June 19, 2014
Tom Chalmers was in college when he was successfully treated for a pediatric brain tumor. Now he attends a support group for young adults affected by cancer, the Lewiston (ME) Sun Journal reports.

Cancer Can’t Stop this Dorchester Teenager

June 14, 2014
Damone Clark, who spent “too much of his 15-year-old life navigating a path around the cancer of guns and gangs that infect his Dorchester neighborhood,” is fighting a rare bone cancer, writes Boston Herald columnist Peter Gelzinis.

U.S. News Names Dana-Farber/Boston Children’s #1 Pediatric Cancer Program

June 10, 2014
Dana-Farber/Boston Children’s Cancer and Blood Disorders Center is the nation’s top pediatric cancer program, according to U.S. News & World Report’s 2014-15 14 Best Children’s Hospitals report. Boston Children’s Hospital ranked first in eight of the ten categories – including cancer – that U.S. News evaluates, more than any other children’s hospital in the country.

Mayor Walsh Reflects on his Childhood Cancer before Audience of Cancer Survivors

June 06, 2014
(News release) Boston Mayor Martin Walsh reflected on his successful fight against childhood lymphoma before an audience of 200 cancer survivors and their family members and clinicians at last night’s annual celebration of survivorship at Dana-Farber Cancer Institute.

Study Calls for Revisiting Guidelines for Screening Childhood Cancer Survivors at Risk of Congestive Heart Failure

May 20, 2014
(News release) One of the first studies to analyze the effectiveness of screening survivors of childhood cancer for early signs of impending congestive heart failure (CHF) finds improved health outcomes but suggests that less frequent screening than currently recommended may yield similar clinical benefit.
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