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Liberia’s Response to Ebola

October 14, 2014
New England Cable News interviewed Venee Tubman, MD, about the Ebola outbreak in Liberia, where she has done extensive work on sickle cell disease.

Gene Therapy for “Bubble Boy” Disease Appears to be Effective and Safe

October 09, 2014
A new form of gene therapy for boys with “bubble boy” disease appears to be not only effective but also may avoid the late-developing leukemia seen in a quarter of SCID-X1 patients in pioneering gene therapy trials in Europe more than a decade ago.

Parents of Late Quincy Teen Watch “Fault in Our Stars” with Her Providers

September 24, 2014
The parents of the teenaged girl whose story inspired “The Fault in Our Stars” spoke at a special showing of the movie at the hospital that treated her, the Patriot Ledger reports.

A Child Saved Becomes a Teen Hunting for Cures

September 08, 2014
Fourteen years ago, Loren Walensky, MD, PhD, diagnosed Kate Franklin with leukemia. Over the summer Kate, now a 17-year-old aspiring doctor, was an intern in the lab of the doctor who saved her life, The Boston Globe reports.

Blood Work

August 11, 2014
Harvard Medical School interviewed Venee Tubman, MD, a pediatric hematologist, about her sickle cell work in Liberia.

Researchers say Study Underscores Importance of Newborn Screening for “Bubble Boy” Disease

July 31, 2014
Findings from a new study argue for expanding newborn screening for “bubble boy” disease, which leaves affected infants so vulnerable to infection that most die before their first birthday if untreated. Covered by the Wall Street Journal, USA Today and other outlets.

Tips for Primary Care Physicians Treating Survivors of Childhood Cancer

July 20, 2014
With recent research finding that many internists do not feel comfortable or prepared to care for survivors of childhood cancer, Lisa Diller, MD, offers tips for primary care providers treating survivors of childhood cancer. MedPage Today and the blog KevinMD picked up the story.

Just 16, Karina Moreira Battles Cancer in her Own Style

July 19, 2014
Fashion blogger Karina Moreira, who is being treated for osteosarcoma, recently celebrated her 16th birthday in grand style with a limo and friends, The Boston Globe reports.

Exploring Scorpion Venom’s Potential to Treat Cancer

June 24, 2014
Building on research from Dana-Farber/Boston Children’s neuro-oncologist Nicole Ullrich, MD, PhD, a pediatric oncologist at Fred Hutchinson Cancer Research Center is investigating the potential of using chlorotoxin from scorpion venom to target tumor cells, Wired magazine reports.

A Young Cancer Patient’s Take on “The Fault in Our Stars”

June 21, 2014
Anya Harp, a 13-year-old leukemia patient, saw the hit movie “The Fault in Our Stars” and describes her reaction to it in The Boston Globe.
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