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‘Bubble Boy’ Disease, Nearly Always Fatal, Could Have a Cure

December 12, 2013
An international consortium of scientists, including researchers at Dana-Farber/Boston Children's, is finding promising early results in a new gene therapy clinical trial they say may lead to an eventual long-term cure for SCID-X1, ABC News reports.

‘It’s not an even playing field’

January 30, 2017
An emerging area of research explores the impact of poverty and financial hardship on care and outcomes for children with cancer, WBUR reports.

A Child Saved Becomes a Teen Hunting for Cures

September 08, 2014
Fourteen years ago, Loren Walensky, MD, PhD, diagnosed Kate Franklin with leukemia. Over the summer Kate, now a 17-year-old aspiring doctor, was an intern in the lab of the doctor who saved her life, The Boston Globe reports.

A new gene therapy transplantation technique could improve treatment of neurodegenerative disease

December 06, 2017
Alessandra Biffi, MD, led a study that shows the efficacy of a new gene therapy transplantation technique that could have future applications for treating neurodegenerative diseases.

A new, faster route for pediatric clinical trials

July 13, 2010
Researchers hoping to test promising cancer therapies for children now have an easier way to navigate the forest of funding applications, regulatory rules, hiring procedures, review boards, statistical services, and other logistical requirements.

A Young Cancer Patient’s Take on “The Fault in Our Stars”

June 21, 2014
Anya Harp, a 13-year-old leukemia patient, saw the hit movie “The Fault in Our Stars” and describes her reaction to it in The Boston Globe.

After Cancer, Fertility Is Often Within Reach

September 24, 2013
Lisa Diller, chief medical officer of Dana-Farber/Boston Children’s, comments in the New York Times on the surprisingly good odds women who had cancer in childhood have of eventually conceiving even if they’d tried unsuccessfully for a year to get pregnant.

Alex's Lemonade Stand Foundation awards $1.75 million grant to Dana-Farber Boston Children's Cancer and Blood Disorders Center

January 30, 2013
Alex's Lemonade Stand Foundation (ALSF) is furthering its commitment to finding cures for all kids with cancer by introducing the ALSF Centers of Excellence program. Dana-Farber Boston Children's Cancer and Blood Disorders Center is one of the first three institutions to be named as a Center of Excellence and will receive funding of $350,000 per year, renewable annually for up to five years for a total of $1.75 million. The other recipients are Baylor College of Medicine and the University of California San Francisco.

Alisha’s Strength Drives Cancer Fight

February 11, 2014
In October 2012 doctors in Dublin told a young Irish couple that the reason their daughter’s head suddenly tilted to one side, the reason she began to stagger and vomit, was that an extremely rare form of cancer had invaded her brain, the Boston Herald reports. In February 2014 the family brought their 3-year-old daughter to Boston for treatment at Dana-Farber/Boston Children’s.

Almost 1/3 of Families of Children with Cancer Have Unmet Basic Needs During Treatment

September 23, 2015
Almost one-third of families whose children were being treated for cancer faced food, housing or energy insecurity and one-quarter lost more than 40 percent of household income, according to a new study from Dana-Farber/Boston Children’s. The study, which was published in the journal Pediatric Blood & Cancer, follows emerging research in pediatric oncology finding that low-income status predicts poor adherence to oral chemotherapy and decreased overall survival.
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